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Interview with Reggie Bibbs on his life with neurofibromatosis

Friday, December 14, 2007

Neurofibromatosis (NF) is a genetic condition causing benign tumors (neurofibromas) to grow along certain types of nerves and, in addition, it can affect the development of bones or skin. There are several variants of the disease but type 1 and type 2 NF account for the vast majority of cases.

The disease manifestations can vary from very mild to severe. Major symptoms include growths on and under the skin; skin pigmentations called café au lait spots in type 1; acoustic nerve tumors and consequent hearing loss in type 2. Growths can affect nearly all parts of the body, and pressure on nearby structures can cause a wide variety of complications. There is a small risk that the tumors transform into malignant cancerous lesions.

NF is one of the most common single-gene human diseases; around 1 in 2,500-4,000 live births are affected by NF-1, whereas NF-2 occurs in about 1 in 50,000-120,000. Both type 1 and 2 are autosomal dominant conditions, meaning that only one copy of the mutated gene need be inherited to pass the disorder. A child of a parent with neurofibromatosis and an unaffected parent will have a 50% chance of inheriting the disorder. The gene responsible for NF-1 and possibly NF-2 is thought to function as a tumor suppressor gene.

In most cases of neurofibromatosis 1, patients can live normal and productive lives. In about 25-40% of patients there is an associated learning disability with or without ADHD. In some cases of neurofibromatosis 2, the damage to nearby vital structures, such as the cranial nerves and the brainstem, can be life-threatening. When tumors are causing pain or disfiguration, surgery is thus far the only proven beneficial treatment option.

Reggie Bibbs is a 43-year-old-man living in Houston, Texas. Mr Bibbs was born with a genetic disease called neurofibromatosis (NF), which causes him to develop tumors on his body (see infobox on the right). NF can be a subtle disease, but in Bibbs’ case it has left him with a disfigured face and deformed leg. But he is happy with the way he looks, and doesn’t want to change his appearance to please other people. He has launched a successful campaign entitled “Just Ask”, and that’s just what Wikinews did in a video-interview.

The interview was prepared by Wikinews reporter Michaël Laurent with the help of Bertalan Meskó (who has a popular genetics and web 2.0 blog). Their questions were sent to a close friend of Mr. Bibbs, Lou Congelio, who kindly conducted the interview.

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Know About Interesting Reviews On Mail Order Nursery

Submitted by: Bhrat 312 Brij

At the present time, it’s very easy to purchase your plants from the Internet which is a big thing for all gardeners even the part time. You just go through the nursery’s collection of offered plants get the one you wish and pay by a credit card. In some days the seedling will get there.

It is extremely useful to look for plants at an online nursery. Purchasing plants online saves you much time and it might also save you money. When you get plants from a online nursery, you can effortlessly get all the info that you ought to learn. Several times a local nursery will not be proficient to inform you if a plant will nurture in acidic type of soil, or may be what time is the most suitable for pruning. Or may be worse you might buy a plant that is different from the label and most of the times you won’t be permitted to replace it.

A local nursery is generally deficient in variety of the plants. You possibly will not be able to get the strawberry trees or maple you are waiting for and they possibly will not be able to arrange them. And even a lot of flowers are difficult to get in the vicinity. Purchasing plants online can work out that issue, since you can search at lot of websites and have exactly what you were incisive for.At the present time, it’s very easy to purchase your plants from the Internet which is a big thing for all gardeners even the part time. You just go through the nursery’s collection of offered plants get the one you wish and pay by a credit card. In some days the seedling will get there.

[youtube]http://www.youtube.com/watch?v=VVGHX5Vtf0Q[/youtube]

It is extremely useful to look for plants at an online nursery. Purchasing plants online saves you much time and it might also save you money. When you get plants from a online nursery, you can effortlessly get all the info that you ought to learn. Several times a local nursery will not be proficient to inform you if a plant will nurture in acidic type of soil, or may be what time is the most suitable for pruning. Or may be worse you might buy a plant that is different from the label and most of the times you won’t be permitted to replace it.

A local nursery is generally deficient in variety of the plants. You possibly will not be able to get the strawberry trees or maple you are waiting for and they possibly will not be able to arrange them. And even a lot of flowers are difficult to get in the vicinity. Purchasing plants online can work out that issue, since you can search at lot of websites and have exactly what you were incisive for.

Getting plants online is a wholly different experience then getting one from the shop? Prior to one venture in purchasing plants online one has to understand the variation among the wholly unequal doings even though they have the one and the same aim. There are varied considerations on the dominance of an idea. The most excellent online nursery must have a broad collection to select from. You must be proficient to have whatever thing that you were searching for. There is too much struggle out there yet for any mail order nursery. The most excellent online nursery and mail order nursery must present you plenty of stuff that you require to be certain that your new-fangled plant flourishes.

Whilst one pool of thoughts believes that purchasing new plants from an online store is not easy, the other pool of considerations upholds that you can’t have good plants if you are getting one from a nursery. Nonetheless the tendency of purchasing plants online is progressively emerging and cannot be disregarded. For active peoples ordering a plant online is a very fitting way to find the plant one calls for. One need not have to go to the local mail order nursery and look through all the plants, incisive for what one is looking for. So finally happy gardening.

Read some important and useful information on mail order nursery this article gives you plenty of valuable information.

Getting plants online is a wholly different experience then getting one from the shop? Prior to one venture in purchasing plants online one has to understand the variation among the wholly unequal doings even though they have the one and the same aim. There are varied considerations on the dominance of an idea. The most excellent online nursery must have a broad collection to select from. You must be proficient to have whatever thing that you were searching for. There is too much struggle out there yet for any mail order nursery. The most excellent online nursery and mail order nursery must present you plenty of stuff that you require to be certain that your new-fangled plant flourishes.Read some important and useful information on mail order nursery this article gives you plenty of valuable information.

Whilst one pool of thoughts believes that purchasing new plants from an online store is not easy, the other pool of considerations upholds that you can’t have good plants if you are getting one from a nursery. Nonetheless the tendency of purchasing plants online is progressively emerging and cannot be disregarded. For active peoples ordering a plant online is a very fitting way to find the plant one calls for. One need not have to go to the local mail order nursery and look through all the plants, incisive for what one is looking for. So finally happy gardening.

About the Author: Get useful information on mail order nursery. Visit

nationaltropicals.com.au

to buy different varieties of plants.

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US Senate unanimously passes genetic nondiscrimination bill

Thursday, April 24, 2008

In a unanimous 95-0 vote Thursday, the United States Senate passed a bill that would forbid employers and health insurance companies from discriminating against someone based on information learned through genetic testing.

The Genetic Information Nondiscrimination Act, described by Massachusetts Senator Ted Kennedy as “the first major new civil rights bill of the new century,” will now be sent back to the House of Representatives, where it could be approved as early as next week. President George W. Bush, who would have to sign the bill for it to become law, has voiced his support for the legislation.

The bill forbids employers from firing, refusing to hire, or otherwise discriminating against employees based on genetic information, such as a family history of a hereditary disease. It also makes it illegal for employers to request genetic information of an employee or the employee’s family.

Health insurance companies are also addressed in the bill, which forbids them from requesting genetic information or using such information to set premium rates or determine enrollment eligibility. However, insurance companies would still have the right to base one’s health coverage on the actual presence of a genetic disease.

Americans can now be confident that their genetic information cannot be used by health insurers or employers in harmful or hurtful ways.

“For the first time we act to prevent discrimination before it has taken firm hold and that’s why this legislation is unique and groundbreaking,” said Maine Senator Olympia Snowe, who sponsored the bill along with Sen. Kennedy and Sen. Mike Enzi. Snowe fears the threat of discrimination may discourage people from undergoing genetic testing, which can help to diagnose a wide range of diseases and lead to lifesaving therapy.

Kathy Hudson, director of the Genetics and Public Policy Center, reports that 92 percent are worried that information gained in genetic testing may be used against them. “After a very long wait,” she says, “Americans can now be confident that their genetic information cannot be used by health insurers or employers in harmful or hurtful ways.”

One part of the bill addresses this concern. “Federal legislation establishing a national and uniform basic standard is necessary to fully protect the public from discrimination and allay their concerns about the potential for discrimination,” the bill reads, “thereby allowing individuals to take advantage of genetic testing, technologies, research, and new therapies.”

Oklahoma Senator Tom Coburn initially blocked Senate action on the bill, warning that it could potentially lead to excessive lawsuits against employers and insurers. But after changes were made to the bill to ease his concerns earlier this week, he supported the legislation and allowed the Senate to vote on it. “We certainly improved the bill from a liability standpoint,” said Coburn, an obstetrician.

Similar bills were unanimously passed by the Senate in 2003 and 2005, but in both years the bill stalled in the House. The current bill was passed in the House of Representatives a year ago by a 420-3 vote. A genetic nondiscrimination bill was first introduced 13 years ago by New York Representatives Louise Slaughter, who says the House will “get it out to the White House as quickly as we can.”

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Recalled pet food found to contain rat poison

Friday, March 23, 2007

In a press release earlier today, New York State Agriculture Commissioner Patrick Hooker, along with Dean of Cornell University’s College of Veterinary Medicine Donald F. Smith, confirmed that scientists at the New York State Food Laboratory identified Aminopterin as a toxin present in cat food samples from Menu Foods.

Menu Foods is the manufacturer of several brands of cat and dog food subject to a March 16, 2007 recall.

Aminopterin is a drug used in chemotherapy for its immunosuppressive properties and, in some areas outside the US, as a rat poison. Earlier reports stated that wheat gluten was a factor being investigated, and officials now state that the toxin would have come from Chinese wheat used in the pet food, where it is used for pest control. Investigators will not say that this is the only contaminant found in the recalled food, but knowing the identity of the toxin should assist veterinarians treating affected animals.

The Food Laboratory tested samples of cat food received from a toxicologist at the New York State Animal Health Diagnostic Center at Cornell University. The samples were found to contain the rodenticide at levels of at least 40 parts per million.

Commissioner Hooker stated, “We are pleased that the expertise of our New York State Food Laboratory was able to contribute to identifying the agent that caused numerous illnesses and deaths in dogs and cats across the nation.”

The press release suggests Aminopterin, a derivative of folic acid, can cause cancer and birth defects in humans and can cause kidney damage in dogs and cats. Aminopterin is not permitted for use in the United States.

The New York State Food Laboratory is part of the Federal Food Emergency Response Network (FERN) and as such, is capable of running a number of unique poison/toxin tests on food, including the test that identified Aminopterin.

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Hell Pizza condom advertisements: complaints upheld

Wednesday, November 29, 2006

A record number of complaints, over 600, against the New Zealand restaurant chain Hell Pizza for its advertising campaign using condoms delivered via letterbox have been upheld by the Advertising Standards Authority (ASA). Family First “welcomes heavenly decision from ASA on Hells Pizza.”

Hell Pizza delivered sealed foil condoms in a cardboard box to households nationwide. On the outside of the box were the words: “Our pizza for meat lovers!” and the restaurant logo. The inside of the box included the condom and explicit instructions on how to use it. Hell Pizza delivered 70,000 condoms to households. An additional 100,000 were distributed to health and community groups who the chain said were “very supportive.”

Bob McCoskrie, director of Family First, said: “This is a victory for the protection of families from grubby advertising by companies like Hell’s Pizza, and is also a message to other companies who cross the line of what is decent and acceptable to our community. This is a pizza delivery company taking the moral high ground on sex education and telling parents how to give sex education to their kids, implying that all parents have failed at this, and kids as young as five should be exposed to this type of material.”

S. Nicholas filed a formal complaint and said in the complaint:” Any child can open the box take out these condoms and play with them. These are contraceptive devices, not playthings. The package also gave full instructions ‘how to use the condom’ in case some young person wanted to ‘experiment’! It shows lack of taste and is irresponsible.”

Other complainants said that it is inappropriate to promote food with a condom, the text “meat lovers” was offensive, that it undermined family values, and removed the right for families to teach sex education to their children. Condom use instructions that came with the advertising campaign were unnecessary and unacceptable and that there are health and safety issues if the condom broke during delivery.

The ASA said that three code of ethic rules were broken. They were basic principle 4, advertisements should follow a sense of social responsibility to both the consumers and society; rule 4, advertisements should not contain anything generally offensive and rule 5, advertisements should not contain anything that would cause serious widespread offence.

The agency Cinderella, acting on behalf of Hell Pizza, said that they “most certainly did approach this campaign with a due sense of social responsibility to consumers and society.”

Cinderella said: “From the very beginning, the company’s marketing activities were unconventional and memorable… HELL has built a successful brand by utilizing a limited marketing budget in ways that sought to grab attention and secure significant additional media coverage that would never have been able to be sustained using conventional, paid-for, advertising techniques.”

“LUST and sex are, in our experience, often found not far apart. One generally follows the other. And enjoying great food either before or after is also not such a stretch.”

Replying to the instructions that have to be printed, Cinderella said: “The terms are not really sexually arousing and the suggestion made by one hysterical complainant that they could then go and act out the instructions on the next door child is just not plausible and probably not even physically possible. It borders on insane to believe that this is a credible risk. …there has not been an explosion of sexual assault of children after being exposed to government health warnings.”

The ASA then considered all information given to them by both complainants and the advertiser.

The ASA agreed that the advertisements were in breach of basic principle 4 because: “Unsolicited, unaddressed delivery of a condom to letterboxes to promote a food brand did not meet [the basic principle 4] standard.” The standard “required all advertising to be prepared with a due sense of social responsibility to consumers and society.”

The ASA then reviewed whether or not the advertisement programme had breached rule 4 and rule 5. “The method of distribution was a key factor in considering whether or not the promotion had breached the Rules, taking into account the random context, medium, audience and product. The majority of the Board noted that it was difficult to target specific groups or ages using unaddressed letterbox distribution. In addition, it was concerned that such a method of distribution allowed any member of a household access to the advertising.” The majority of the ASA board did not find the instructions offensive but did agree that it would cause widespread offense. The advertisement programme is in breach of rule 4 and rule 5.

Some of the ASA board said: “…While the promotion had caused offence to some, this was offset by the possibility that the promotion had reached an audience that may not access the safe sex message via other media.”

The ASA decided to uphold the complaints, “complaints were unanimously upheld.”

“Our message to Hell’s Pizza is simple – stay out of the bedroom and get back into the kitchen,” Mr McCoskrie said.

Retrieved from “https://en.wikinews.org/w/index.php?title=Hell_Pizza_condom_advertisements:_complaints_upheld&oldid=365600”
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Attractions In And Near Rocky Mountain National Park

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byAlma Abell

Vacations in and around Rocky Mountain National Park can be relaxing. They can also be filled with a myriad of events and things to experience. In fact, between nearby Grand Lake and Rocky Mountain National Park attractions can occupy you physically, emotionally and sensually no matter in what season you arrive. This entire region of Colorado is a smorgasbord of delightful adventures waiting to happen.

Attractions in Rocky Mountain National Park

Rocky Mountain National Park is one of the state of Colorado’s “Crown Jewels.” Since 1915, it has wowed the visitors with its natural beauty. With 265,769 acres to explore, the park is a naturalist’s dream. It is home to 900 species of plants as well as 281 types of birds and 60 species of mammals. The park offers various children’s program.

Visit any of the five visitor centers. They offer Ranger-led programs as well as interactive exhibits, life-sized wildlife displays and interpretive programs. Come to enjoy the Park on special event days or plan to visit any of the historic sites in the Park. The Holzwarth Historic Site (a trail and early ranch/homestead) and the remains of the 1880 silver mining town of Lulu attract visitors who want to catch a glimpse of early Colorado history.

Yet, the biggest of all the Rocky Mountain National Park Attractions remains the mountains and the trails that run through them. The Park boasts some of the state’s highest peaks. You can climb and hike up to the peak of Longs Peak or Lumpy Ridges. Gaze out over a landscape that embraces more than 100 lakes, lush wetlands, pine, fir and spruce forests and alpine tundra.

Attractions in Grand Lake

While the Rocky Mountain National Park is one of the major attractions that bring visitors to Grand Lake, it is not the only one. Grand Lake has its own. Throughout the year, special events commemorate the community, the state and the country. Visit during the Winter Carnival in January or take part in the Arts and Crafts Fair in the summer. Throughout the year, visitors can enjoy the beauty that surrounds the town. Visit the Kauffman House Museum and discover local and regional history.

Natural wonders abound in Grand Lake. Yet, visitors and locals also enjoy the other every day attractions. Come visit any of the many restaurants and shops that line the Grand Avenue. Walk the historic wood boardwalk. Grand Lake is about providing its guests with attractions that make for a rounded experience.

Rocky Mountain National Park Attractions

If you plan a visit to Colorado, do not ignore some of its greatest assets. Be sure to visit the Rocky Mountain National Park. Attractions here and in nearby Grand Lake combine the wonders of nature with human activities. The result is a wonderful experience for every member of the family.

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Fuel leak prompts 17,000-vehicle recall by Toyota

Sunday, June 27, 2010

Toyota announced on Friday that it will recall around 17,000 Lexus vehicles in response to risks of the fuel tank in the cars leaking after a collision.

The Lexus HS 250h model was subjected to the recall following a US National Highway Traffic Safety Administration (NHTSA) investigation. Despite previously passing Toyota safety inspections, the conclusions of an NHTSA sub-contracted investigator were that; when the vehicles in question collided with an object at more than fifty-miles-per hour, more than 142 grams of fuel, the maximum allowed by US law, leaked from the crashed car.

According to Toyota, further tests did not show any additional failure of the fuel tank.

In response to the findings, Toyota issued a recall of all affected vehicles, since the company had no solution immediately available. The recall includes 13,000 cars already sold, as well as another 4,000 still at dealerships.

Toyota says it plans to conduct further tests to determine the cause of the leak. A Toyota spokesman, Brian Lyons, said that the company was “still working to determine what the root cause of the condition is.” It’s still unclear when exactly the recall will take place, or when dealerships will be allowed to sell this model again. Lyons said that Toyota is “working feverishly to get this resolved as soon as possible.”

Toyota isn’t aware of any accidents stemming from the leaking fuel tank in the affected vehicles, first introduced in the summer of 2009.

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World Wildlife Fund: 75% of seafood species consumed in Singapore not caught sustainably

Wednesday, October 5, 2016

The Singaporean branch of the World Wildlife Fund (WWF) published a guide yesterday critiquing the practices employed to catch seafood destined for sale in the country. According to the publication, three-quarters of the more than 40 species of seafood commonly consumed by Singaporean residents were obtained in a manner detrimental to environmental sustainability.

The guide, titled the Singapore Seafood Guide, lists fish species such as Indian threadfin, silver pomfret, and yellowbanded scad, all frequently used in Singaporean dishes, under its “Avoid” category. Highlighting the high rates at which these species are being fished and consumed, the WWF said, “Without collective and decisive action, these popular fish could disappear from Singapore’s menus within our lifetime.”

On her organization’s reasons for publishing the guide, WWF-Singapore CEO Elaine Tan stated, “We are squandering one of our greatest natural resources by failing to manage our fish stocks sensibly. As one of the biggest consumers of seafood in the world per capita, Singaporeans have a big role to play in protecting our oceans. The Seafood Guide empowers everyone in the supply chain to make conscious choices that prevent the further exploitation of fish stocks.” According to the WWF, an average Singaporean eats 22kg (about 48.5lb) of seafood annually, versus 20kg (44lb) average per person globally.

In conjunction with the launch of the guide, the WWF started the Sustainable Seafood Business Forum on Tuesday to promote action on the topic among seafood purveyors. An initiative which emerged from the forum was the Responsible Seafood Group, which counts amongst its members supplier Global Ocean Link and integrated resort Marina Bay Sands. All organizations involved in the group agree to standards on the sustainable sourcing of seafood as outlined by the WWF.

On Marina Bay Sands’ commitment to seafood sustainability, Kevin Teng, the resort’s Executive Director of Sustainability, said, “Since 2014, we have eliminated sharks fin from the restaurants we own and operate. At that time, we also started serving selected seafood sourced from suppliers that fish or farm responsibly, based on global seafood standards.”

Lucas Glanville, Executive Chef of Grand Hyatt Singapore, stated, “Our customers are demanding to know where their seafood comes from. Finding alternatives to endangered species on the red list and choosing to work with sustainable suppliers and their products has gone beyond being a corporate responsibility, and become a commercially viable decision for us”. According to the WWF, the hotel chain serves seafood compliant with its sustainability standards.

The WWF has compared Singapore’s population to that of Finland, whilst also highlighting the discrepancy in seafood sustainability practices in both countries. According to a report by the organization, 98% of seafood consumed in Finland meets WWF standards on sustainability.

Matti Ovaska, conservation officer for the WWF’s Finnish branch, elaborated on the country’s sustainability practices where seafood consumption is concerned, “Sustainability has become an everyday element in Finland’s seafood trade, and companies are very familiar with the origin of the fish they purchase. In addition, over one third of Finns use the seafood guide consciously to make better decisions”.

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Take A Look At Italy With An Italy Rail Pass

Submitted by: Abelod Hahn

From Lille we constantly head for Tournai-Mans-Charleroi and Namor, then on to Arlon before receiving to Luxembourg, on the E42 and then onto the A4 route.

Luxembourg is the most affordable location in Europe to fill up with fuel, so a break here is normally welcomed. Based on how far you want to journey every day, preparing for overnight stops is required.

Low cost accommodation can be discovered on most routes and superior clean and fairly inexpensive accommodation features Accour hotels, B&B, Formula An individual hotels. Most hotels do a continental breakfast at a small cost.

The route via Luxembourg is simple and you can be through it in 1/2 hr to three/4 hr. We observed the route to Metz and Nancy to be the quickest and quickest route. It is plainly marked and easy to follow.

[youtube]http://www.youtube.com/watch?v=GZ4-XY9qUJo[/youtube]

As soon as you are back again in France and heading for Metz, there is a shell out motorway, the E25, which presents an easy route to Strasbourg. There are alternative routes which go by way of Nancy and the St.Die tunnel to Selestat in the Alsace area of France, but we have skilled delays and very poor roads while applying this route.

It is an uncomplicated motorway method to and by way of the town of Strasbourg which is obviously marked all the way on a quite straight road and on to Selestat, Mulhouse/Basil towards Switzerland.

Due to the customs delays at the border, we often take a break at one of the over described hotels in purchase to have an early commence by Basil and into Switzerland.

On entering the Swiss border, there is a road tax which addresses your automobile for one particular 12 months and a coloured sticker is positioned on your windscreen. This is a expense of about ??25. You shortly realise why you have to shell out this fee as the roads by way of Switzerland are scenic, excellent and have many extended tunnels where delays are normal. The scenic regions are outstanding and you can also uncover great refreshment/wash/shower locations.

The ideal route from here is the A2 to Luzern and to head for the 15 mile extended tunnel at St.Gothard. It typically normally requires us one-2 hrs to get through the delays main to the tunnel. So be knowledgeable.

After coming out of the tunnel, the road heads as a result of the Italian sector of Switzerland and heads for Bellinzona, still on the A2 and on to the Swiss/Italian border at Como. On passing the border into Italy, the street changes to the A9 heading for Milan.

Warning

We identified the Italian drivers to be really impatient and repeatedly tail gate when flashing their lights and on a regular basis sounding their horns. Just smile and be affected person with them.

When you planned your route you should have made the decision on the most suitable Italian port to sail from. Our vacation spot is to the island of Kefalonia so we personally uncovered the Venice line to be most effective and by turning left on the Milan ring street onto the ‘pay’ motorway, the Venice route is plainly marked and on leaving the motorway at Mestre there is just a brief journey to the Venice dock location.

About the Author: Long time journalist

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